Responses
This section describes responses to HIV/AIDS and its impact on children and young people around the world, including examples of particular projects , particular countries and what might be needed to expand the current level of services . Key points about responses to HIV/AIDS and its impact on children and young people are that:
1. There are a huge number of examples of people, communities and organisations supporting children affected by HIV/AIDS. Key principles of effective responses have been identified.
2. Many of the communities and families that are seeking to support children effectively face many problems apart from HIV/AIDS. The most important of these is poverty. Others include drought and armed conflict .
3. Despite the knowledge that has been gained about what works and what does not, many activities are still being developed and supported which are inappropriate.
4. There has, until recently, been limited support and political will for initiatives focused on orphans and other vulnerable children. This has meant that financial and other resources have often been lacking.
5. Activities that have been started to date are relatively small-scale and fragmented. In order to meet the needs of the huge number of children orphaned and made vulnerable by HIV/AIDS, the scale of activities needs to be increased massively.
The origin of responses
Communities did not start to respond to orphans and other vulnerable children only with the start of the HIV epidemic. Many societies have long and complex traditions of care and support for children who have been orphaned or are vulnerable for other reasons. In Africa, for example, these are primarily based around extended families.
Family and community responses
In many countries, HIV/AIDS has greatly increased the burden on these coping mechanisms, particularly for those who provide community-based care. In most societies this burden falls mainly on women. However, the 'front line' in the response to the effects of HIV/AIDS on children remains the family and local community. Other organisations, such as governments, the private sector, NGOs and CBOs, should focus on seeking to support family and community responses. Such approaches are better and more cost-effective than others.
Attitudes
Viewing the issue through the "lens" of human rights has changed the way activities are being carried out. For example, many more organisations now see children and young people as active and competent individuals who wish to participate in activities. Also, although the importance of meeting children's physical needs is still recognised, there is greater appreciation of the need to meet psychosocial needs as well.
Poverty
Practical experience of working with children, families and communities severely affected by HIV/AIDS has shown that many of the issues do not arise directly as a result of HIV/AIDS. Many of them are poverty-related. HIV/AIDS particularly affects poor communities and makes poverty worse. Many responses have tried a variety of ways to meet these poverty-related needs, including direct "handouts" of material goods and activities aimed at economic strengthening .
Inappropriate responses
Regrettably, there are still a large number of examples of responses which are inappropriate. Three types are highlighted here:
- Institutions have been shown to cater poorly for the psychosocial needs of vulnerable children. They are expensive to set up and run. They do not prepare children and young people well for adult life. It would be impossible to build enough institutions to cater for all orphans and other vulnerable children in the world. Despite this, they receive political and public support.
- Charity/welfare-based initiatives tend to see children and young people as passive recipients of care, be "needs-based" rather than "rights-based" and have very limited degrees of community participation.
- Initiatives which target children specifically on the basis of HIV/AIDS have been shown to be inappropriate because they are unjust, impractical and greatly increase stigma and discrimination .
Political will
Responding successfully to HIV/AIDS and its effect on children and young people requires political will. Sadly, this has often been lacking in particular countries and internationally. This has been because of an over-emphasis on prevention and an assumption that interventions focused mainly on adults also benefit children. Consequently, organisations wishing to work in this area have often lacked financial resources. Even where international donors are willing to provide funds, it is not always clear how money can be effectively channelled to community-based and grassroots organisations.
National Responses
Many countries are now trying to establish coordinated national responses to issues facing orphans and other vulnerable children. Examples of these are provided as country case studies . A number of key components to a national response have been identified. These include:
- A national situation analysis which includes an assessment of responses to date. This is a similar but more extensive process than the kind of local situation analysis which might be carried out before starting activities for orphans and other vulnerable children.
- Establishing national consultation processes and structures for coordination. This may involve establishing structures, such as committees, at national and sub-national levels, such as states, provinces, districts and counties.
- Developing a national strategy and plan of action for orphans and other vulnerable children. The plan of action should include a budget.
- Introducing a policy and regulatory framework. This will include having laws and other policies which control those who carry out activities with orphans and other vulnerable children.
- Introducing a monitoring and reporting system based on a national monitoring and evaluation plan.
Increasing Scale
Finally, many good examples of effective work are too small and fragmented to meet the needs of orphans and other vulnerable children. There is a need to greatly enlarge and increase these efforts.
Resources
USAID Project Profiles: Children Affected by HIV/AIDS (Eng)
This is a comprehensive and detailed report on 77 initiatives working with orphans and vulnerable children supported by USAID around the world.
Synergy Project, USAID, 2002, 156 pages.
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Children Orphaned by AIDS: Frontline Responses from Eastern and Southern Africa (Eng)
This publication looks at the responses of four African countries (Botswana, Malawi, Zambia and Zimbabwe) to the challenges faced as a result of the large number of adults dying as a result of HIV/AIDS and the large number of children orphaned as a result.
UNICEF, 1999, PDF, 38 pages, 2080 kb.
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Comparison of Orphan Coping Mechanisms in the Old (pre-colonial) and New (post-colonial) Shona (Zimbabwe) Ndebele (Zimbabwe, South Africa) Kalanga (Botswana, Zimbabwe) and Tswana (Botswana, South Africa) Cultures (Eng)
This paper explores the way that orphans were cared for in pre-colnial times in Africa and compares this with ways they are care for now.
Chipfakacha, V.G., WHO, PDF, 11 pages, 127 kb.
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A Framework for the Protection, Care and Support of Orphans and Vulnerable Children Living in a World with HIV/AIDS (Eng)
This framework is based on lessons learned over many years. It considers families and communities as the foundation of an effective, scaled-up response.
UNICEF, 2004, PDF, 23 pages, 397 kb.
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Children Affected by HIV/AIDS: Rights and Responses in the Developing World (Eng)
This paper is number 23 in a series of SCF working papers. It sets out to examine the situation of children affected by HIV/AIDS living in resource poor countries, and to analyse the nature of the responses by households and communities, programming organisations, governments and donors.
Grainger, C., Webb, D. and Elliott, L., SCF, 2001, PDF, 128 pages, 1155 kb.
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Orphans and Other Vulnerable Children: What Role for Social Protection? (Eng)
This report on a workshop held in Washington in 2001 starts by stating that the effects of HIV/AIDS on children globally represents an unprecedented crisis and argues for it to be approached through a social protection framework.
Levine, A., World Bank, 2001, PDF, 54 pages, 196 kb.
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Young people and HIV/AIDS: Responding to the new Asian crisis (Eng)
This report illustrates approaches used by SC UK to reduce the impact of HIV/AIDS on children across South and South-East Asia and how they work with children to prevent the further spread of HIV/AIDS.
Save the Children UK, 2001, PDF, 436kb, 43 pages
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Responding to the Needs of Children Orphaned by HIV/AIDS (Eng)
This paper is based on experience of work in 23 countries. It gives practical advice as to how to respond to the needs of children orphaned by AIDS.
Hunter, S. and Williamson, J., USAID, 1998, PDF, 36 pages, 94 kb.
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The Cost-Effectiveness of Six Models of Care for Orphan and Vulnerable Children in South Africa (Eng)
This detailed study examines the costs of six models of care in South Africa.
Desmond, C. and Gow, J., University of Natal, 2001, PDF, 68 pages, 303 kb.
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Approaches to Caring for Children Orphaned by AIDS and other Vulnerable Children: Essential Elements for a Quality Service (Eng)
This is a very detailed report of a study carried out amongst 6 childcare organizations in South Africa.
Loening-Voysey, H. and Wilson, T., UNICEF/Institute for Urban Primary Health Care, 2001, PDF, 112 pages, 695 kb.
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AIDS, Public Policy and Child Wellbeing: Chapter 15: The Impact of HIV/AIDS on Orphans and Programme and Policy Responses (Eng)
This document forms chapter 15 of the book entitled 'AIDS, Public Policy and Child Wellbeing'. It identifies five key policy challenges faced as the result of the increased number of orphans and vulnerable children as a result of HIV/AIDS.
Phiri, S. and Webb, D., 2002, PDF, 43 pages, 137 kb.
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National Systems and Strategies for Provisions of Care for HIV/AIDS Affected Adults and Children (Eng)
This document starts from the major, long-term challenges presented by HIV/AIDS and argues that large-scale systems will be needed to respond to these.
Hunter, S., 2000, PDF, 47 pages, 473 kb.
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Making a Difference for Children Affected by AIDS: Baseline Findings from Operations Research in Uganda (Eng)
This document is an evaluation of an orphan support programme in Uganda which has a strong emphasis on succession planning, including the use of memory books.
Gilborn, L.G., Nyonyintono, R., Kabumbuli, R. and Jagwe-Wadda, G., Horizons, 2002, PDF, 33 pages, 577 kb.
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Childhood Challenged: South Africa's Children, HIV/AIDS and the Corporate Sector (Eng)
This Save the Children paper consists of a report of a survey conducted with Ford Foundation into the extent to which the corporate sector in South Africa is engaged with children affected by HIV/AIDS.
Moshoeshoe, M., De Cleene, S., King, F., Heaton, A. and Smart, R., SCF, 2002, PDF, 61 pages, 647 kb.
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Testimony Before the House International Relations Committee (Eng)
This presentation was made in the US to the House International Relations Committee and gives an overview of the type of programmes being implemented for orphans and vulnerable children in developing countries.
Gilborn, L.Z., Population Council, Horizons, 2002, PDF, 5 pages, 87 kb.
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2002 East and Southern Africa Regional Workshop on Children Affected by HIV/AIDS: Implementing the UNGASS Goals for Orphans and Other Children Made Vulnerable by HIV/AIDS; 25-29 November 2002; Windhoek, Namibia (Eng)
This is a matrix with each participating country's progress towards UNGASS goals and commitments made at a workshop in Lusaka in 2000.
Loudon, M., UNICEF, USAID, SIDA, NORAD, International Save the Children Alliance, UNAIDS, FHI, Government of Namibia, 2002, PDF49 pages, 847 kb.
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Strengthening National Responses: Southern Africa Workshop on Orphans and other Vulnerable Children (Maseru, Lesotho; 10–14 November 2003) (Eng)
This document gives an overview of a workshop that had the overall goal of facilitating effective action to improve the situation of orphans and other vulnerable children in the participating countries.
USAID/UNICEF, 2003, PDF, 79 pages, 1451 kb.
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Developing a Strategy for the Alliance’s Children’s Work (Eng)
This short paper gives details of the India HIV/AIDS Alliance's current work and highlights emerging issues and challenges in their work with orphans and vulnerable children
Alliance India, Feb 2005, PDF, 66kb, 3 pages
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