Involving People Living with HIV/AIDS in Research:

Guaranteeing the rights of HIV positive study participants

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Involving people living with HIV/AIDS (PLHA) in HIV/AIDS response activities can improve service delivery, empower them by ending their isolation, curb the effects of stigmatisation and discrimination, and add a powerful voice to prevention activities.

This poster explains the participation of PLHA in a study carried out in India between 1998 and 2001 by the Alliance in collaboration with Horizons, to look at how NGOs have involved PLHA in their response activities. The research focused on 17 NGOs carrying out HIV/AIDS prevention, care and support, in Burkina Faso, Ecuador and Zambia, as well as in India. It explains the rights of PLHA, the study methods that would be used, and how the experience would be empowering for the participants themselves.

Intended audience NGO support programmes
INGOs
NGOs
CBOs
Policy makers
Donors
Author Horizons
International HIV/AIDS Alliance (Secretariat)
Language English
Date published 09/01/2001
Size 1 page
Themes Subject - Civil Society Development
Subject - People Living With HIV
Type Lessons learnt report/study

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